Areas for improvement in end-of-life care

García Caballero, R.; Herreros, B.

doi:10.1016/j.rceng.2020.06.011

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García Caballero, B. Herreros" "autores" => array:2 [ 0 => array:4 [ "nombre" => "R." "apellidos" => "García Caballero" "email" => array:1 [ 0 => "rebecagarciacaballero@gmail.com" ] "referencia" => array:2 [ 0 => array:2 [ "etiqueta" => "a" "identificador" => "aff0005" ] 1 => array:2 [ "etiqueta" => "*" "identificador" => "cor0005" ] ] ] 1 => array:3 [ "nombre" => "B." "apellidos" => "Herreros" "referencia" => array:1 [ 0 => array:2 [ "etiqueta" => "b" "identificador" => "aff0010" ] ] ] ] "afiliaciones" => array:2 [ 0 => array:3 [ "entidad" => "Servicio de Medicina Interna, Hospital Universitario Infanta Sofía, San Sebastián de los Reyes, Madrid. Grupo de Trabajo de Bioética y Profesionalismo de Sociedad Española de Medicina Interna, Spain" "etiqueta" => "a" "identificador" => "aff0005" ] 1 => array:3 [ "entidad" => "Unidad de Medicina Interna, Hospital Universitario Fundación Alcorcón, Alcorcón, Madrid. Instituto de Ética Clínica Francisco Vallés-Universidad Europea, Madrid, Spain" "etiqueta" => "b" "identificador" => "aff0010" ] ] "correspondencia" => array:1 [ 0 => array:3 [ "identificador" => "cor0005" "etiqueta" => "⁎" "correspondencia" => "Corresponding author." ] ] ] ] "titulosAlternativos" => array:1 [ "es" => array:1 [ "titulo" => "Áreas de mejora en la asistencia al final de la vida" ] ] "textoCompleto" => "End-of-life care has evolved in recent decades and now forms part of good clinical practice. Healthcare at the end of life has been institutionalized, professionalized, and medicalized and is now part of daily practice in internal medicine.<a class="elsevierStyleCrossRefs" href="#bib0005">1,2</a> This care for and palliation of terminal illness is no longer considered optional, rather it is an ethical and professional obligation. Just as it is obligatory to prescribe antibiotics for bacterial pneumonia, for patients at the end of life, initiating palliative measures is an unavoidable duty. For all patients, we must seek out the best option for their health, inform them, and request consent, whether it is pneumonia or the end of life.The change that has taken place in end-of-life care in recent years has affected healthcare professionals, patients and their families, and society as a whole. This transition has been accompanied by confusion and has led to misunderstandings about what end-of-life care should be. Before, when terminal patients were deemed lost causes, they passed away in their homes surrounded by their loved ones, but endured enormous physical suffering. With the later medicalization and technicalization of death, patients then died in acute-care hospitals,<a class="elsevierStyleCrossRef" href="#bib0015">3</a> where attempts were made to prolong life at all costs because medicine “could do everything.” In the journey towards palliation, physicians have had to learn to refocus the aims of medicine, to know and manage its limits, and to comprehensively care for patients in the final stage of life.However, this change has not been accompanied by adequate training for internal medicine physicians (some of the protagonists in end-of-life care) on palliative care, communication, and bioethics.<a class="elsevierStyleCrossRef" href="#bib0020">4</a> Internists have had to learn on the fly in their day-to-day about this complex area of knowledge. In a recent survey, only one out of every four internists know what limitation of therapeutic efforts was. Forty-three percent did not have training on palliative care, and more than 60% had anxiety when facing the planning of end-of-life care with patients.<a class="elsevierStyleCrossRef" href="#bib0025">5</a>This is why the Best Practices at the End of Life Guide by the Spanish and Portuguese Societies of Internal Medicine is so important.<a class="elsevierStyleCrossRef" href="#bib0030">6</a> This guide is an essential training document for clinicians who treat patients at the end of life, although it is not the first of its kind. Various scientific societies,<a class="elsevierStyleCrossRefs" href="#bib0035">7–9</a> institutions,<a class="elsevierStyleCrossRef" href="#bib0050">10</a> hospitals, and private groups<a class="elsevierStyleCrossRef" href="#bib0055">11</a> have established and published their indications. But compared to others, this guide has the advantage of having been created by means of a rigorous Delphi process which included 105 Spanish and Portuguese panelists (the majority of whom are physicians but which also includes lawyers, experts in bioethics, managers, politicians, and journalists), which lends great external validity to its recommendations.The guide proposes 37 recommendations with a high degree of consensus that are structured in different groups: patient identification; the patient’s knowledge, values, and preferences; information; the patient's needs; attention and care; palliative sedation; and care after death. In an attempt at synthesis, it explains the recommendations and contextualizes them legally. With all of this, it intends to improve the care and attention in patients' final last days and ensure a good death. For this to occur, it is necessary for professionals to speak the same language; this is possible through the guide, which is eminently clear. All of this is in addition to the fact that a consensus document on end-of-life care provides support to professionals and decreases the stress that these situations cause.Like all guides, the document is oriented towards the majority of cases and situations. However, it is the clinicians who then have to know that treatment must be individualized to each patient and take into account their circumstances.<a class="elsevierStyleCrossRef" href="#bib0060">12</a> As one of the principles of a good death, one of the recommendations states that patients should be accompanied by their caregivers and loved ones. During the SARS-CoV-2 crisis, this principle has not been able to be fully abided by, which has caused great emotional stress in patients, their loved ones (generating possible pathological grief), and professionals. However, this does not invalidate this recommendation: the guide provides guidance on how treatment should be for patients at the end of life, even if a specific patient or a certain circumstance does not allow all of its recommendations to be fully carried out.The guide and its recommendations are useful both for experts in palliative care and for physicians who are less familiarized with managing patients at the end of life. During this epidemic, many physicians who were not used to treating patients in the final days of life have had to confront this. Managing and facing death has been an additional source of stress for them on top of the difficult situation they were already living through. This guide would have been of great help to all, experts and nonexperts alike.The professionals who treat patients at the end of life know what their objectives are, how to achieve them, and, most of all, that these objectives are based on rigor." 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Pintor" 4 => "M.D. Martín" 5 => "M.A. Sánchez-González" ] ] ] ] ] "host" => array:1 [ 0 => array:2 [ "doi" => "10.1136/medethics-2012-100791" "Revista" => array:6 [ "tituloSerie" => "J Med Ethics" "fecha" => "2014" "volumen" => "40" "paginaInicial" => "205" "paginaFinal" => "208" "link" => array:1 [ 0 => array:2 [ "url" => "https://www.ncbi.nlm.nih.gov/pubmed/23579231" "web" => "Medline" ] ] ] ] ] ] ] ] ] ] ] ] ] "idiomaDefecto" => "en" "url" => "/22548874/0000022100000006/v2_202106050640/S2254887421000503/v2_202106050640/en/main.assets" "Apartado" => array:4 [ "identificador" => "72714" "tipo" => "SECCION" "en" => array:2 [ "titulo" => "Editorials" "idiomaDefecto" => true ] "idiomaDefecto" => "en" ] "PDF" => "https://static.elsevier.es/multimedia/22548874/0000022100000006/v2_202106050640/S2254887421000503/v2_202106050640/en/main.pdf?idApp=WRCEE&text.app=https://revclinesp.es/" "EPUB" => "https://multimedia.elsevier.es/PublicationsMultimediaV1/item/epub/S2254887421000503?idApp=WRCEE"]

Revista Clínica Española (English Edition)

ISSN: 2254-8874

Revista Clínica Española published its first issue in 1940 and is the body of expression of the Spanish Society of Internal Medicine (SEMI).
The journal fully endorses the goals of updating knowledge and facilitating the acquisition of key developments in internal medicine applied to clinical practice. Revista Clínica Española is subject to a thorough double blind review of the received articles written in Spanish or English. Ten issues are published each year, including mostly originals, reviews and consensus documents.

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Current Contents / Clinical Medicine , JCR / SCI-Expanded, Index Medicus / Medline y Excerpta Medica / EMBASE

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Impact factor

The Impact Factor measures the average number of citations received in a particular year by papers published in the journal during the two preceding years.

© Clarivate Analytics, Journal Citation Reports 2022

Impact factor 2023

2.3

Citescore

CiteScore measures average citations received per document published.

Citescore 2023

0.7

SJR

SRJ is a prestige metric based on the idea that not all citations are the same. SJR uses a similar algorithm as the Google page rank; it provides a quantitative and qualitative measure of the journal's impact.

SJR 2023

0.162

SNIP

SNIP measures contextual citation impact by wighting citations based on the total number of citations in a subject field.

SNIP 2023

0.211

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Vol. 221. Issue 6.

Pages 341-342 (June - July 2021)

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